At 15 months of age, Arionah suffers from epilepsy, microcephaly and global developmental delay, all as a result of an unknown metabolic disorder. Arionah had a sister Breonna who died 2 years ago at the age of 6 from the same disorder and resulting liver failure. As a single mother with 3 children, Arionah’s mom needs support.

With limited head and trunk control and a stiff upper body, Arionah is unable to walk or sit up on her own.